Useful Links & Downloads
FH Resources for Families
- FH explainer: Medical researcher Shirin Ibrahim explains what FH is in 5 minutes.
- Young people come up with and create videos about FH:
- Familial Hypercholesterolemia:An Information Booklet(NL) on FH for Patients (Dr. Leive Ose). The LDL target levels are in accordance with the European ESC guidelines (2021).
- Adigital children's book about FH
- Brochureon the DNA study and the questionnaire
- Aletteryou canuse toinform your family members about your FH diagnosis and what it means for them
- Power of Attorney to Contact Family Members
- Children: FH booklet (little fishing rods)
- Children: Leaflet on lifestyle and dietary advice (Pediatric Clinic, Amsterdam UMC)
- Brochure: FH and Insurance: Association of Insurers
- FH info Harteraad (now part of the Dutch Heart Foundation)
- FH info heredity.nl
- FH Information on Hereditary Heart Diseases
- FH Info Thuisarts.nl
- FH Information from the Heart Foundation
- FH Info: Women's Heart
- FH Facebook Community (Dutch Heart Foundation)
- Association of Parent and Patient Organizations (VSOP, for congenital and hereditary conditions)
FH Links for Healthcare Providers
- News on Hartvaat.nl
- Online FH diagnostic tools
- DNA Testing Request Form(April 2025 Version)
- Request a consent formfor ‘old’ test results
- Guidelines
- Genes in Amsterdam UMC’s comprehensive DNA panel
- LEEFH educational series (CVGK) (login required):
- The Role of the Family Physician– Prof. Dr. Martina Cornel
- The How and Why of Screening– Prof. Kees Hovingh
- FH and the LEEFH network in the Netherlands– Prof. Dr. Erik Stroes, Medical Director of LEEFH
- Tools for detecting FH– Rens Reeskamp
- Children and Adolescents– Dr. Bert Wiegman
- FH and Nutrition– Annemiek Spliethof-de Ruiter
- FH: Women and Pregnancy– Dr. Jeanine Roeters van Lennep
- Familial Hypercholesterolemia and Lp(a), Nick Nurmohamed
