Visual <p>Leven met FH</p>

Living with FH

If you have FH, there can be a lot to deal with. The realization that you have a hereditary condition and the fear of the possible consequences can cause a lot of stress for you and your family. In addition, everyone is looking for a suitable treatment.

When it comes to discussing this with children, we’ve found that many parents find the Harteraad booklet very helpful. Harteraad (part of the Dutch Heart Foundation) also has a private Facebook community that you can join.

The Van der Woude family's story

The Van der Woude family openly shares what they went through, how they deal with the situation, and what helps them in their daily lives. Their story shows that you are not alone as a loved one.

Project with young people.

This is what a meeting with pediatrician Bert Wiegman and several enthusiastic young people can lead to. They came up with a series of short videos based on prejudices, and even played the main roles themselves.

The project was made possible in part by a donation from the Apostolic Society.

Check out the campaign on the LEEFH YouTube channel.

1 in 300 people has FH
Family members have a 50% chance of having FH
FH is highly treatable
Testing for FH can be done as early as birth
Family members of FH patients can get tested for free
With FH, you can easily get insurance
Elevated Lp(a) is also an important risk factor

High cholesterol can be hereditary.

High cholesterol is not only caused by lifestyle, but can also be hereditary. You cannot tell by looking at someone: you can be slim and healthy and still have high cholesterol. Does cardiovascular disease run in your family at a young age? Discuss this with your doctor—a simple blood test can check your levels and, if necessary, start treatment in time.

Experiences

Jannie has a genetic predisposition to high cholesterol

Jannie has a genetic condition that causes high cholesterol: “I’ve been taking medication since I was 11.”

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