Home | Patients and family

Patients and families

Do you live with FH or does FH run in your family? On this page, you will find clear information about familial hypercholesterolemia (FH), testing within the family, how you can test for FH and treatment, and how to deal with it in everyday life. This allows you to read at your own pace, make decisions together, and quickly seek the right help when needed.

What is FH?

Familial hypercholesterolemia (FH) is one of the most common hereditary metabolic disorders. Approximately 1 in 300 Dutch people have FH.

Family history research

Family members have a 50% chance of also having FH. That is why a cascade screening is carried out.

Request a sample pack

Family members can easily request a test kit.

Living with FH

More than 30,000 Dutch people are known to have FH.

Frequently Asked Questions

LEEFH receives many questions about FH.

1 in 300 people has FH

Family members have a 50% chance of having FH

FH is highly treatable

Testing for FH can be done as early as birth

Family members of FH patients can get tested for free

With FH, you can easily get insurance

Elevated Lp(a) is also an important risk factor